From a child's mouth...
This was a paper written by my daughter when she was in 4th grade for a report. She wrote about herself and her thoughts at that time. It speaks for itself. I was born with a disease called Arthrogryposis. My mom had to have a c-section when I was born because the doctors knew I was probably going to be disabled and it was the safest way for me to be born. I had to stay in the hospital for three weeks until the doctors knew I was strong enough to go home. Arthrogryposis is a fairly rare disease. It comes from a Greek term which means hooked or curved joints. The joints become very stiff and form contractures. Muscles become weak and don’t develop the right way. All the joints in my body have been affected by it. I can’t hold my head up because my muscles are too weak. I am not able to move my arms or legs very much. I can’t run or walk and need to be in a wheelchair to get around. Most of the time Arthrogryposis doesn’t occur again in the same family. It usually isn’t a genetic disease...