New School Year

School started last week on Thursday. Two days of school and then three day weekend. Why? Why not just wait until the day after Labor Day like so many other school districts? If we had brought Katie to Duluth as originally intended, Amy would have missed school anyway. I don't like it starting before Labor Day. It has to do with money though and, of course, money makes the world go round (or so says the song from Cabaret.)

I am having issues with Amy in school. Thursday she had four classes with no aides or paras to assist her. She was left sitting there alone with no one being responsible for her. One aide in particular wanted to point her to the class and do it on her own. That doesn't work for Amy. She wants independence but not that much. She needs someone to help her take notes, move her arm, hold up books or papers, etc. That just didn't happen.

This is a new school where people don't know Amy or her needs. I understand that and it will take time to work these things out. What if there had been an emergency? What if there was a fire and Amy is left alone with no one to help her. It really upset me. She was upset too because her hand was left on her joystick (which controls her wheelchair) for most of the day. She can't put it down by herself. She now has someone with her during the classes. One of the paras though (according to Amy) is not a real helpful woman. She is gruff and impatient. She is the one who wanted Amy to go to class alone the first day. She again asked her yesterday if she wanted to do it too.

Amy visits the nurse after lunch for meds and stuff. The time we had originally set up for her to go was changed and now she is missing more than half of her language arts class. I am not happy about that and have addressed it with her case manager. Hopefully it will change. Amy has brought up the subject of not going to the nurse. That is not an option for her. I got very upset last night as a result of our conversation about it.

Logan, my darling puppy, has been good lately. He has either gone potty and poop outside or on his puppy pad. I thought I would let him in the livingroom as an experiment and within five minutes he pooped on the fireplace. I was so upset and then Amy told me about Language Arts. I ended up being very quiet and my mood spilled over to Amy and Dane. I made Dane tense and Amy upset. It wasn't intentional. I was just so upset and it spread.

I realized that I am having an issue with all the changes recently. Junior high, growing up, the world in general, assorted miscellany. I don't do well with change and it is a struggle for me. I am trying on a moment by moment basis to confront and deal with stuff but I don't always succeed. I really just want to go back to bed and sleep. Getting up at 6:25 ain't a fun thing and I prefer bed to it.

Life goes on and will become better or at least more tolerable. The good Lord is working on me and I am trying not to struggle and fight Him as He does it. It sure can be hard though. I truly am blessed to have such a wonderful husband who helps me through things. Sometimes he drags me kicking and screaming for my own good. I think.

Comments

Anonymous said…
OH MY GOD!!! I WOULD GO IN THERE AND YELL AT THEM!!! ARG!!! im even mad about the jr high with amy!!! they shouldnt do that at all. ever!!! like that makesme so mad i wanna go yell at them! im sorry but they are dumb if they think amy can do everything on there own!!! thats it the next time i have class and the jh doesnt im comming and kicking some butt!!! GOD IM UBER MAD ABOUT IT!!!

i love you guys tho :D

~ms daisy~

:P
Anonymous said…
My dearest friend, how I understand! I have had many recent days like that too, and as you know the fall is filled with those anniversaries of the heart for me that fill my heart with tears and weigh on my soul.... I too have to deal with the "letting go and letting God" process, and for women like us, who HAVE to take charge (wouldn't the world fall apart without us?) it is a humbling experience and one easily chafed under. Change, for all that there is growth and strength to be found after it has been worked on us, is a painful process, and one I too would prefer to avoid whenever possible (if the cost seems too high, anyhow). I agree you are blessed to have Dane in your life: he is a one-of-a-kind human being and you are lucky to have him. When life becomes hard, he is a rock you can lean on, and I envy you that!

Let's try to do lunch again sometime soon, and just talk. Your grace and your faith help to sustain me, and give me persepctive that as bad as things sometimes feel, there are always those who have it worse, and we have much to be thankful for!

Thanks for your honesty: I see myself reflected in your words, and feel stronger in understanding I am not alone!

Love you much,

Reina

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